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Secret

Take THAT Whole Foods Lady!

It's been a productive week. Recovery wise, I am doing super well! I stopped wearing anything covering my scar. If people think the back of my head looks weird, they can deal with it. It's better for my scar to get air so that is what I am doing. (Take that whole foods lady!) I've stopped taking my prescription pain killers too! I'm down to just a few Advil a day which means I can drive and have wine again.

Stitches Update

They are gone! On Thursday, Dr W said they were ready to come out. Given that this is the first time I have ever had surgery and stitches, having them removed was rather nerve wracking. Dr W did a fantastic job. My mom held my hand and watched Dr W remove the stitches. It took about a minute for him to get them out. Joel had to sit in a chair on the other side of the room at the request of the Doctor. (This is what happens when you pass out on him) Having the stitches removed was a funky feeling. It kinda hurt but it wasn't terrible. I also took a super pain killer about 45 minutes prior to the appointment; I'm a planner, what can I say.

Walking

I've got my walk back! I can stand up straight and basically walk like a normal person! Though, I still can't turn my head very well. Joel said on the way to Hopkins on Thursday, I reminded him of Bernie in Weekend at Bernie's. When I turn, I have to rotate from the waist, it is rather "interesting". Dr W gave me some exercises so I can start getting more motion back. Now, I just have to do them.

More from Dr W

Dr W said I am doing fantastic job on getting well. We started talking about a back to work date and have a timeframe in mind. I am not going to jinx myself by saying what that date is yet. He likes how my scar looks and said it is healing beautifully! I don't have to see him in-person again for 6 weeks! This will be the longest I have gone since November without seeing a Neurologist. I'll take it.

Mom's Visit

Today is mom's last day in DC :-( She is heading back home in the morning. I was hoping recovery would take a bit longer and I would get her for a full month, but I am doing great so I guess this is a good thing. This is the longest mom and I have been together since I was in High School. It has been great having her here. I haven't had to worry about anything. Now that I am almost fully mobile, it is time for her to head back home to Indiana.

The Next Tests

I've been trying to come up with things to do over the next month as I start feeling like getting out more. Basically, I want to push myself but not over do it. I've signed up for a knitting class that meets once a week for three weeks. This will be challenging because A- I have no domestic skills (ask Joel) B- I  have to do something I am not familiar with and C- I am going to try to walk there. The class starts on Wednesday evening and I hope I can do it! I tried to teach myself how to knit, but I can't figure out how to get a second row.

I'm allowed to only walk 'till the 21st and after that I am allowed to try other forms of exercise! I'm thinking of trying running to see how it feels. If it doesn't hurt, I am going to try to get back to being able to run at least a 5K. If it does hurt, I will give it a few more weeks to heal and try again.

So other than my mom leaving, it has been a great week! I can't believe surgery happened almost two weeks ago.

 

I'm Having Brain Surgery. What's Your Excuse?

My Hair

I did it. I cut ten inches of hair in preparation for D-Day. It makes me feel like I am in control of something. And I'll take it. Friday at work, it was great seeing everyone's expression. I guess it is kinda surprising to go from shoulder length hair to hardly hitting my ears, but I like it! It may have to stay this way after surgery.

The End (of Work) is Near

It is weird thinking that I have 7.5 hours are left of work before I am officially on leave. It is strange to not know when I will be going back. I think it will be even stranger when I go for my Hopkins pre-op on Tuesday. That's it. After that, it is just getting my parents here. I can almost count the number of days left on one hand; my stomach started the "knot process" on Saturday. So many coworkers have commented on how calm I am and, well, they don't know that I am probably giving myself an ulcer with all of my worrying. Work is a distraction, for the most part, it keeps me thinking about other things. I'm not sure how I am going to do without that distraction. By talking and blogging about everything I have been able to connect online with several people who have had brain surgery. Knowing people that have been through this is beyond comforting. I know that I can make it through this.

Good Eats

On Saturday I had brunch with two wonderful ladies, Cate & Chrisi. It was the first time I got to see both of them in way too long. Through the first part of brunch we were chatting about hair, what's going to happen and all of that jazz. Then, we got past the scary stuff and started creating a top 10 list of post-surgery must dos. I am still working on this list but here it goes:

(In true Letterman fashion)

  1. Get a pedicure; this is more of a necessity.
  2. Take mom to the Cherry Blossoms.
  3. Have a good-bye party for my living will.
  4. Dinner celebration with friends!
  5. Take my mom to Founding Farmers. Four words: Lobster Mac & Cheese.
  6. Figure out what it is going to take to get cleared by the FAA to fly again. (oy - not looking forward to that process)
  7. Take Joel to Europe. (he's never been)
  8. Take at least one nap every day!
  9. Visit San Fran again and hop on a flight to Hawaii.
  10. While still bandaged, ride through the supermarket/target on a motorized scooter. Take pictures.

My PUPPY!

If you've been following my twitter account, you would know that on Thursday I got a PUPPY! ::squee!:: Allison sent me a get-well package and it arrived with a Corgi in it!! (and an awesome book about brain surgery) I really don't care that it isn't a real puppy, at least I have some form of a puppy! Allison introduced me to this fantastic blog: Obsessive Corgi Disorder. Since that fateful day a few weeks ago, I have been obsessed with Corgis. You have to admit, they are rather adorable. If you don't believe me, check out OCD.

But, I don't have a name for the new puppy. I can't decide. It has to be an English name given that it is a Corgi. I already have Mr. Darcy and Scarlet so those names are out. Why should I worry about a name for a stuffed dog? Well, Corgi is going with me to Hopkins. Some days you need something to keep you strong and, since my husband passes out all the time, a puppy is just the answer. So, Corgi needs a name; a strong name. One that says, "Hey, having brain surgery is just a walk in the park!". Any thoughts on that one?

The Last 6 Days

So I was going to attempt to write something funny about the upcoming week, but it is making me nervous. I need to find ways to stay busy and stay focused on the end result: getting better. My father and sister will be here late Friday night and my mom flies in on Sunday morning. I guess that is that. I need a funny movie now.

Oh and if you haven't heard, I now own the only Apple DeskBook Pro on the market.

My Big Secret

In my time blogging, I never thought I would have to write a post like this; actually, it is rather difficult. I blog about personal things, like getting married to Joel and mostly things I find interesting. But, this is going to become a bit more personal. I must say, I owe the courage to talk about what is going on to Erin, who you probably know as @queenofspain. She helped me understand that sometimes you just need to tell something to #suckit, like Lupus or brain surgery.

Here it goes: towards the end of 2010, late November to be exact, I started feeling a little weird. I played it off to basically having a desk job during the day and not getting enough exercise. Then, there was a point where I couldn't even feel my extremities. Yeah, that kind of weird. After ER visits and the many doctor's appointments that I complained about on twitter, I found out that there is something wrong with my brain (queue scary music).

I've tried to find the sliver lining in all of this. The fantastic news is although this sounds horrible, some of the potential disorders I could have had, I have the best life-friendly one. In fact, the doctor thinks that there is a chance my life will get back to normal in the near future. But, to get back to normal, I have to have brain surgery (next queue for scary music). Considering every term and potential issues the doctors have educated me on (and every diagnosis I've given myself thanks to webMD) I am beyond lucky. I really am.

In a few days I am going to be admitted to Johns Hopkins for surgery. I would explain what is going to happen, but Joel has already passedout when the Doctor was just describing my brain (I'm going to tease him for years about that). Basically, after a few hours of surgery I should be on the road to recovery. I know my hospital stay isn't going to be short, but it is shorter than I expected. The one downside is my doctor refuses to answer my requests for installing more RAM. Since he is already going to be in there and the MacBook Pros just got a refresh, I figure I should be able to get one too! It's only fair.

Recovery is, well, recovery. It outright sucks but everyday I will be getting better. Everyday, I will be one step closer to my normal self and till then, I have my mom and Joel to take care of me. I'll be blogging more (hopefully) because I will be required to take it easy and stay off of my feet; Doctor's orders.

I'm going to be handing off my social accounts to Joel. I know how tipsy I get after 1/4th of a glass of wine so I have a feeling high-powered pain medicine and I are going to be a very interesting combo. I'll be entertaining people in the ICU, that is for sure. You'll know if I snatched my iPhone. Which brings me to my last point, please don't hold me responsible for tweets posted directly after surgery.

So, that's the big secret that I have been keeping. I kinda wish it was a fun secret like getting a puppy or seeing a double rainbow. But, it isn't.